I Can Hear The Bells

No, not wedding bells, but end of treatment bells! A few months ago a bell was installed in my local hospital’s chemotherpay suite. The tradition is that patients ring the bell when they have completed their final chemotherapy treatment, to signify moving on to the next chapter, and the end of a dificult journey, like some sort of graduation ceremony.

The words on the plaque next to the bell read:

Ring this bell
three times well
its toll to clearly say
my treatment’s done
the course is run
and I am on my way!

As this new initiative comes into play I have been hearing the bells more and more frequently on my hospital visits. The idea is that it is a celebration, onlookers cheer and clap to celebrate whilst a person rings the bell after their last round of treatment. Personally, I have found this particulary difficult during my more recent visits; having a stage four diagnosis, and no end date for treamtment means that i’ll be recieving immunotherapy for the rest of my life, so I won’t get that chance to ring the bell…ever!

Part of me understands the process and why it is important, however I’ll be the first to admit that I feel sad and also slightly angry that I don’t get to ring the bell, and can’t help but feel it’s a bit on an insensitive process for those who can’t. Not everyone will make it to the end of their treatment, or like me do not have an end date. If you’re in my shoes no treatment is a sign of impending death, as I cannot live without it.

I often think the ringing of the bell might be a bit premature, some patients may have to return for more treatment in the future, without having had a scan to check the drugs have done the job they were meant to. It seems to early to celebrate something that is so unpredictable, although I’m sure that being able to acknowledge the victory of reaching the end of a cycle is important and empowering to patients, but part of me will always feel it is unfair on those who aren’t able to celebrate in the same way.

I am sure that the bell ringing creates a feeling of positivity and hope for some, and marks the beginning of a new chapter. I can only imagine a life free of treatment and hospital appointments, and having something to symbolise the end of an awful ordeal. Maybe I am being overly negative or sensitive, but If someone rings the bell or not it doesn’t determine if they will go into remission or stay cancer free. Perhaps there are other ways patients can celebrate without it being so public?

I understand that there are now a number of bells in chemotherapy suites up and don’t the UK, and I am sure it is great for many patients and their families. However, I know I am not the only stage 4 patient in this position. No matter how hard I try to stay positive, I know I won’t get to the ring the bell, as I don’t have a future without cancer in my life. Yet again, I can add it to the long list of things I am missing out on.

7 thoughts on “I Can Hear The Bells

  1. Jo. Thanks for your latest post. Please please talk to the hospital. Tell them how you feel about the bells. Seems the initiative has good intentions and some bad consequences. Please do talk to them and share your thoughts. It might well help others too 🙂

    Do you mind if I share this post on Twitter (13.7k followers). I am sure others would be interested – but you may not want me to do that.

    Liked by 1 person

  2. Hi Jo, this is such a pertinent issue you’ve raised. I see the bells as simply marking the end of a chunk or block of something because as you say cancer can return, or for some treatment is indefinite. It’s completely understandable that this is upsetting for you to have to sit through.

    Thanks for bravely sharing your feelings on it honestly. Sarah xx

    Liked by 1 person

  3. Hello Jolene, your blog is so well written you are such an amazing girl, it so difficult to know what to say, my heart goes out to you. Stay as positive as you are, they keep coming up with some new cures all the time, ie: stem cell treatment it so hard for you, never give up. I pray for a cure. It was so lovely to meet you. Tina x x

    Liked by 1 person

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